New survey reveals 9 out of 10 patients with IPF were happy with how their doctor told them about their IPF diagnosis
20.9.2016 11:36 | Business Wire
A diagnosis of IPF is news that few patients want to hear from their physician, but the reality is that approximately 3 million people worldwide are living with idiopathic pulmonary fibrosis (IPF). It’s a rare and devastating disease with a median life expectancy after diagnosis of approximately 2-3 years.
This Smart News Release features multimedia. View the full release here: http://www.businesswire.com/news/home/20160920006002/en/
IPF patient survey infographic (Photo: Business Wire)hh
As with the diagnosis of any life-threatening disease, it can be a distressing and emotional experience for patients and their families. It is a time when it can be difficult to take the news in as well as remember/understand the information shared by a doctor.
In positive news, today results of a new global survey supported by Boehringer Ingelheim of over 120 patients with IPF show that 9 out of 10 patients were happy with the way their doctor informed them of their diagnosis.
However, a group of patients in the survey revealed there was additional information that would have been helpful to have received at that time. These include information about support, treatment and the realities of living with IPF:
- 60% of patients would like to have known what other support was available to help with their IPF
- 60% wanted to know if IPF requires long-term treatment and how effective those treatments are
- 50% of patients wanted an insight into the realities of living with IPF over the long term
- 50% wanted an understanding of how their IPF would progress after treatment initiation, including if they will need to take oxygen
“A diagnosis of IPF is devastating for the patient, their partner, for everyone. It is very reassuring to see from this survey that these patients felt positive about how their physician managed their diagnosis discussion,” said Klaus Geissler, European Idiopathic Pulmonary Fibrosis and Related Disorders Federation (EU-IPFF). “But we know that when patients are stressed and anxious that they can forget or not understand key parts of the conversation they have with their physician: it’s helpful for us to see that patients are keen to have more information about the support that will be available to them and details of treatment moving forward. I would recommend patients involve their families in the first interview with their physician in order to better understand and remember the discussion around diagnosis.”
The new global survey of 121 patients with IPF follows a 2015 global survey of over 400 pulmonologists. Both surveys were designed to provide insights into IPF and the realities of living with the condition.
The new results revealed that the priorities for patients after being diagnosed with IPF closely matched what physicians believed their patients’ priorities were at that time.
- The top three priorities for patients were: seeing an IPF specialist (26%), getting information about the disease (21%) and initiation of an effective treatment (18%).
- The top three priorities physicians believed their patients had were: getting information about the disease (35%), initiating an effective treatment (23%) and seeing an IPF specialist (21%).
In addition, when patients were asked what was most important to them in knowing how IPF will affect them, ‘Knowing what treatment options are available to me’ was the top choice for patients (77%). In the 2015 pulmonologist survey, this was also the top choice for what physicians believed was most important to patients (77%).
“As a physician it’s encouraging to see the majority of patients happy with how they were informed about their IPF diagnosis,” said Dr. Marlies Wijsenbeek, pulmonologist, Erasmus MC, The Netherlands. “But good communication doesn’t stop there – we need to understand what patients wish to know and take into consideration their level of understanding. Seeing that physicians’ understanding of patients’ priorities are truly aligned with what patients report to be their priorities is a great first step to achieving this.”
At Boehringer Ingelheim we recognise the importance of sharing information so that patients and their families are informed about this serious disease. To coincide with the launch of the survey results, we are pleased to also share ‘Life with IPF – an eBook’. Available on www.LifewithIPF.com the e-book describes the IPF patient journey, from diagnosis and what to expect, through to management options and helpful resources and tips.
Also available through Google Play: https://bit.ly/2czw8Zi and iTunes: apple.co/2cLuw0a
Stay tuned for the next insights from the survey in early 2017 to coincide with Rare Disease Day 2017.
~ ENDS ~
Please click on the link below for ‘Notes to Editors’ and ‘References’:
This press release is issued from our Corporate Headquarters in Ingelheim, Germany and is intended to provide information about our global business.
Media + PR
Dr. Kristin Jakobs
Phone: +49 6132 – 77 144553
Fax: +49 6132 – 77 6601
Om Business Wire
Business Wire, a Berkshire Hathaway company, is the global leader in multiplatform press release distribution.
Følg saker fra Business Wire
Registrer deg med din epostadresse under for å få de nyeste sakene fra Business Wire på epost fortløpende. Du kan melde deg av når som helst.
Siste saker fra Business Wire
Spirent Tests Wi-Fi Network Performance with O2 at the Coca-Cola London Eye17.8.2017 15:57 | Pressemelding
Spirent Communications plc (LSE:SPT), today announced its Landslide E10 network test platform has been used with O2 to validate the Wi-Fi network performance and capacity at the Coca-Cola London Eye, before the launch of a new smartphone application last month. This Smart News Release features multimedia. View the full release here: http://www.businesswire.com/news/home/20170817005758/en/ Spirent Landslide E10 helped O2 validate Wi-Fi performance and capacity at the Coca-Cola London Eye, before the launch of a new smartphone application last month. (Photo: Busines Wire) Merlin Entertainments plc, operator of the London Eye, wanted to measure its Wi-Fi network performance, to ensure its infrastructure could provide an excellent experience for users of the new app, which puts increased demands on the Wi-Fi network. “The London Eye is a global attractio
Watch BizWireTV: A Camera You Can Wear and Krispy Kreme’s Famous Donuts Get Eclipsed with Chocolate17.8.2017 12:08 | Pressemelding
On BizWireTV, catch some Quick Biz Hits and see the latest in Star Power. Also see what’s happening in the startup world with the Accelerator Report, featuring the VC Watch and this week’s Startup Standout. This Smart News Release features multimedia. View the full release here: http://www.businesswire.com/news/home/20170817005305/en/ BizWireTV is hosted by Jordyn Rolling (Photo: Business Wire Now you can watch BizWireTV, and the latest breakthroughs in tech from the biggest brands, on any screen you want by downloading the new app through the Apple TV and iPhone App Store and Google Play for Android devices. Top of the Wire Introducing FrontRow: the camera re-invented. Watch BizWireTV to see more disruptors as well as the top 5 trending stories of the week! A core c
PsiOxus Therapeutics Announce Two New Board Appointments: New Board Appointments Strengthen Company’s US Presence17.8.2017 07:00 | Pressemelding
PsiOxus Therapeutics, Ltd. (PsiOxus) today announced the appointment of Charles Rowland and Duncan Higgons to the Board of Directors as part of an ongoing drive to expand in the US. Charles Rowland was most recently the President and Chief Executive Officer (CEO) of Aurinia Pharmaceuticals, a clinical stage pharmaceutical company focused on the global lupus nephritis market. Prior to this, he served as the Vice President and Chief Financial Officer (CFO) of ViroPharma, during which time the company grew into a global biopharmaceutical business with $500 million in annual revenues until it was acquired by Shire plc for $4.2 billion. Before joining ViroPharma, Mr. Rowland was executive Vice President, CFO, and interim co-CEO, for Endo Pharmaceuticals. In his earlier career, Charles held finance and operational positions at Biovail Pharmaceuticals, Breakaway Technologies, Pharmacia
Smarsh Adds Voice Archiving Offering with Acquisition of London-Based Cognia17.8.2017 06:59 | Pressemelding
Smarsh®, providing information archiving solutions for compliance, e-discovery and risk management, has completed the acquisition of Cognia, a worldwide leader in cloud-based voice archiving, audio search and analytics. Smarsh will leverage Cognia’s intellectual property and development resources to offer its global customer base enhanced capabilities around mobile and fixed-line voice communication – alongside a market-leading range of electronic communications – within The Archiving Platform. The acquisition will expand the existing presence of Smarsh in Europe and is central to its MiFID II compliance solution for financial firms. In addition to capturing incoming and outgoing communication from fixed-line recording solutions, Cognia uniquely captures voice content directly from leading mobile carriers. Carrier-direct capture is the most reliable and automated method for capt
Schlumberger Announces Third-Quarter 2017 Results Conference Call16.8.2017 21:23 | Pressemelding
Schlumberger Limited (NYSE:SLB) will hold a conference call on October 20, 2017 to discuss the results for the third quarter ending September 30, 2017. The conference call is scheduled to begin at 8:30 am US Eastern time and a press release regarding the results will be issued at 7:00 am US Eastern time. To access the conference call, listeners should contact the Conference Call Operator at +1 (800) 288-8967 within North America or +1 (612) 333-4911 outside of North America approximately 10 minutes prior to the start of the call, and ask for the “Schlumberger Earnings Conference Call.” A webcast of the conference call will be broadcast simultaneously at www.slb.com/irwebcast on a listen-only basis. Listeners should log in 15 minutes prior to the start of the call to test their browsers and register for the webcast. Following the end of the conference call,
Rimini Street Named to Inc. 5000 List for Seventh Consecutive Year16.8.2017 18:20 | Pressemelding
Rimini Street, Inc., a global provider of enterprise software products and services, and the leading independent support provider for Oracle and SAP products, today announced that it was named to Inc. magazine’s 36th annual Inc. 5000 list for the seventh consecutive year. The Inc. 5000 list is an exclusive ranking of the nation’s fastest-growing private companies and represents the most comprehensive look at America’s entrepreneurs. This Smart News Release features multimedia. View the full release here: http://www.businesswire.com/news/home/20170816005908/en/ Rimini Street has earned a place on the annual Inc. 5000 list since 2011, joining an elite group – approximately 2% – of Inc. 5000 honorees to ever achieve this milestone. (Photo: Business Wire) Rimini Street has earned a place on the annual Inc. 5000 list since 2011, joining an elite group – approximatel
I vårt presserom finner du alle våre siste saker, kontaktpersoner, bilder, dokumenter og annen relevant informasjon om oss.Besøk vårt presserom