New survey reveals 9 out of 10 patients with IPF were happy with how their doctor told them about their IPF diagnosis
A diagnosis of IPF is news that few patients want to hear from their physician, but the reality is that approximately 3 million people worldwide are living with idiopathic pulmonary fibrosis (IPF). It’s a rare and devastating disease with a median life expectancy after diagnosis of approximately 2-3 years.
This Smart News Release features multimedia. View the full release here: http://www.businesswire.com/news/home/20160920006002/en/
IPF patient survey infographic (Photo: Business Wire)hh
As with the diagnosis of any life-threatening disease, it can be a distressing and emotional experience for patients and their families. It is a time when it can be difficult to take the news in as well as remember/understand the information shared by a doctor.
In positive news, today results of a new global survey supported by Boehringer Ingelheim of over 120 patients with IPF show that 9 out of 10 patients were happy with the way their doctor informed them of their diagnosis.
However, a group of patients in the survey revealed there was additional information that would have been helpful to have received at that time. These include information about support, treatment and the realities of living with IPF:
- 60% of patients would like to have known what other support was available to help with their IPF
- 60% wanted to know if IPF requires long-term treatment and how effective those treatments are
- 50% of patients wanted an insight into the realities of living with IPF over the long term
- 50% wanted an understanding of how their IPF would progress after treatment initiation, including if they will need to take oxygen
“A diagnosis of IPF is devastating for the patient, their partner, for everyone. It is very reassuring to see from this survey that these patients felt positive about how their physician managed their diagnosis discussion,” said Klaus Geissler, European Idiopathic Pulmonary Fibrosis and Related Disorders Federation (EU-IPFF). “But we know that when patients are stressed and anxious that they can forget or not understand key parts of the conversation they have with their physician: it’s helpful for us to see that patients are keen to have more information about the support that will be available to them and details of treatment moving forward. I would recommend patients involve their families in the first interview with their physician in order to better understand and remember the discussion around diagnosis.”
The new global survey of 121 patients with IPF follows a 2015 global survey of over 400 pulmonologists. Both surveys were designed to provide insights into IPF and the realities of living with the condition.
The new results revealed that the priorities for patients after being diagnosed with IPF closely matched what physicians believed their patients’ priorities were at that time.
- The top three priorities for patients were: seeing an IPF specialist (26%), getting information about the disease (21%) and initiation of an effective treatment (18%).
- The top three priorities physicians believed their patients had were: getting information about the disease (35%), initiating an effective treatment (23%) and seeing an IPF specialist (21%).
In addition, when patients were asked what was most important to them in knowing how IPF will affect them, ‘Knowing what treatment options are available to me’ was the top choice for patients (77%). In the 2015 pulmonologist survey, this was also the top choice for what physicians believed was most important to patients (77%).
“As a physician it’s encouraging to see the majority of patients happy with how they were informed about their IPF diagnosis,” said Dr. Marlies Wijsenbeek, pulmonologist, Erasmus MC, The Netherlands. “But good communication doesn’t stop there – we need to understand what patients wish to know and take into consideration their level of understanding. Seeing that physicians’ understanding of patients’ priorities are truly aligned with what patients report to be their priorities is a great first step to achieving this.”
At Boehringer Ingelheim we recognise the importance of sharing information so that patients and their families are informed about this serious disease. To coincide with the launch of the survey results, we are pleased to also share ‘Life with IPF – an eBook’. Available on www.LifewithIPF.com the e-book describes the IPF patient journey, from diagnosis and what to expect, through to management options and helpful resources and tips.
Also available through Google Play: https://bit.ly/2czw8Zi and iTunes: apple.co/2cLuw0a
Stay tuned for the next insights from the survey in early 2017 to coincide with Rare Disease Day 2017.
~ ENDS ~
Please click on the link below for ‘Notes to Editors’ and ‘References’:
This press release is issued from our Corporate Headquarters in Ingelheim, Germany and is intended to provide information about our global business.
Media + PR
Dr. Kristin Jakobs
Phone: +49 6132 – 77 144553
Fax: +49 6132 – 77 6601
Om Business Wire
(c) 2018 Business Wire, Inc., All rights reserved.
Business Wire, a Berkshire Hathaway company, is the global leader in multiplatform press release distribution.
Følg saker fra Business Wire
Registrer deg med din epostadresse under for å få de nyeste sakene fra Business Wire på epost fortløpende. Du kan melde deg av når som helst.
Siste saker fra Business Wire
LTI USD Revenue Growth up 23.4% YoY; Net Profit Jumps 35.2% YoY23.7.2018 14:53 | Pressemelding
Larsen & Toubro Infotech (BSE: 540005, NSE: LTI), a global technology consulting and digital solutions company, announced its Q1 FY19 results today. In US Dollars: Revenue at USD 319.9 million; growth of 3.5% QoQ and 23.4% YoY Constant Currency Revenue growth of 5.1% QoQ and 22.9% YoY In Indian Rupees: Revenue at Rs 21,557 million; growth of 7.7% QoQ and 29.0% YoY Net Income at Rs 3,612 million; growth of 24.8% QoQ and 35.2% YoY “We are pleased to report a strong start to the year with 5.1% QoQ revenue growth in constant currency. Our growth has been driven by continued healthy momentum across multiple sectors, with double-digit sequential growth in BFS and High-Tech & Media in Q1. We are also happy to announce a large deal with a Global Fortune 100 consumer and pharmaceutical giant with a net-new TCV win in excess of US$ 50 Mn. “Our focus on leveraging digital technologies to solve the challenges of physical and digital convergence is resonating with our clients and has laid the found
TRIGO Deepens its Expansion into the USA by Acquiring Lumbee Enterprises23.7.2018 13:00 | Pressemelding
TRIGO has acquired 100% of the capital of Lumbee Enterprises based in Greer, SC. This acquisition allows TRIGO to deepen its expansion into the USA within the automotive industry. Lumbee began providing supply chain and logistics services over 25 years ago and it’s TRIGO’s intent to leverage Lumbee’s proven expertise to further expand its business. Lumbee is best known for its expertise in Quality Manufacturing, Sorting, Inspection and Sub-Assembly Operations, specializing in providing best-in-class inspection and rework services to keep OEM assembly lines running seamlessly and without interruption. This press release features multimedia. View the full release here: https://www.businesswire.com/news/home/20180723005040/en/ Co-founded by Colby Griffin in 2001, LUMBEE Enterprises of South Carolina has focused on providing quality management services to shorten supply chain interruptions through the innovative use of technology and processes. “This acquisition is a great opportunity for
STATS Taps Dr. Helen Sun, Former CTO of JPMorgan Chase Commercial Banking Division, to Lead STATS’ Technology Operations23.7.2018 11:00 | Pressemelding
Today, STATS, the worldwide leader in sports data and intelligence, expanded its executive roster with the introduction of Dr. Helen Sun as Chief Technology Officer. Sun will oversee STATS’ product, engineering, artificial intelligence and data production teams in developing the next generation of products and services that will revolutionize the performance and experience of sports. Sun joins STATS from JPMorgan Chase, most recently serving as Chief Technology Officer of the Commercial Banking division. For over 22 years, Sun has a proven record as a technology strategist and thought leader in previous roles as Vice President of Cloud Computing, Information Management, and Architecture at Motorola Solutions; Senior Director of Global Enterprise Architecture at Salesforce; and Director of Enterprise Architecture at Oracle. “Helen is a leader in transforming businesses through innovative solutions and she will be a driving force in building upon our reputation as the leading sports tech
IBC2018 Enhances Conference Programme with Keynote Sessions from Amazon, Viacom and Wonderhood Studios23.7.2018 10:57 | Pressemelding
IBC2018, the world’s most influential media, entertainment and technology show, today announces three new Keynote speakers from globally renowned media and entertainment powerhouses. The addition of executives from Amazon, Viacom and Wonderhood Studios adds to the big-name line up of thought provoking and informative sessions and speakers already announced by IBC. Taking to the stage on the first day of the conference, Thursday 13 September, to deliver the Trailblazer Keynote session entitled ‘Give Your Vision a Voice’ is Max Amordeluso, EU Lead Evangelist Amazon Alexa, Amazon. As voice assistants such as Amazon Alexa are transforming the way audiences discover content and control devices, Amordeluso’s must-attend presentation will explore a variety of avenues, including: how to build a voice strategy with Alexa; why voice experiences are now a crucial part of any multi-platform content business; how to implement an engaging voice strategy for content products and generate new revenues
SIGOS: Digital Experience - 120 mobile network operators from 60 countries meet in Nuremberg23.7.2018 10:06 | Pressemelding
For more than 10 years, SIGOS has been inviting mobile network operators from all over the world to the annual telecommunications conference. After venues such as Düsseldorf, Berlin, Munich, Beijing, Kuala Lumpur, etc., this year's multi-day conference took place at the Nuremberg convention centre. This press release features multimedia. View the full release here: https://www.businesswire.com/news/home/20180723005282/en/ SIGOS conference panel discussion - photo: www.uwe-niklas.com Over 120 network operators and telecommunications companies from over 60 countries worldwide came together to talk about the latest innovations in areas such as network quality, performance, 5G, IoT, roaming, and telecommunications fraud detection solutions. Dr. Ulrich Maly, Lord Mayor of the City of Nuremberg, welcomed the international audience in his opening speech and explained:"...when we talk about mobile communication, then we talk about people and their needs that are and should be the focus of atte
AURAK Enters into a Memorandum of Understanding with Al-Farabi Kazakh National University22.7.2018 09:52 | Pressemelding
The American University of Ras Al Khaimah (AURAK) President, Professor Hassan Hamdan Al Alkim, and the Al-Farabi Kazakh National University (KazNU) Rector, Professor Galimkair Mutanov, of the Republic of Kazakhstan, signed a Memorandum of Understanding (MoU), agreeing to exchange students, faculty, and research. This press release features multimedia. View the full release here: https://www.businesswire.com/news/home/20180722005025/en/ The Al-Farabi Kazakh National University (KazNU) Rector, Professor Galimkair Mutanov, of the Republic of Kazakhstan and the American University of Ras Al Khaimah (AURAK) President, Professor Hassan Hamdan Al Alkim, exchange a gift to commemorate their universities uniting in an MoU agreement. (Photo: AETOSWire) In the spirit of fostering a close international relationship between the Republic of Kazakhstan and the United Arab Emirates, developing bilateral relations in educational and scientific fields, and wishing to make their own contributions to the