Business Wire

'More than Systemic Sclerosis: The Inside Story' – patients reveal the unseen impact of lung fibrosis

29.6.2017 07:00 | Business Wire

Del

‘More than Systemic Sclerosis: The Inside Story’ launches today to mark World Scleroderma Day. This global initiative highlights the importance of understanding the ‘inside story’ of each individual living with systemic sclerosis, and to increase awareness of the potential serious consequences when fibrosis develops in vital organs such as the lungs.

This Smart News Release features multimedia. View the full release here: http://www.businesswire.com/news/home/20170629005422/en/

Anna, Hungary (Photo: Business Wire)

Anna, Hungary (Photo: Business Wire)

The new photography and film gallery is available at www.boehringer-ingelheim.com/respiratory/systemic-sclerosis/inside-story and features eight patients from seven countries, each telling their story about living with this rare condition.

Systemic sclerosis is a disfiguring, disabling and potentially fatal rare disease that causes scarring (fibrosis) of the skin (also known as ‘scleroderma’) and of major organs, such as the lungs (lung fibrosis).1,2,3 Systemic sclerosis affects an estimated two million people worldwide, mostly women in the prime of their lives between 25 and 55 years of age.3,4,5

"Beneath the visible, external effects of systemic sclerosis, many people with the disease also live with internal organ involvement including lung scarring (fibrosis) that can make it difficult to breathe and perform everyday activities. Patients with lung involvement face an uncertain future as the fibrosis can be debilitating and may become life-threatening,” said Professor Christopher Denton, Consultant Rheumatologist at the Centre for Rheumatology at the Royal Free Hospital and University College London, UK.

This global initiative has been developed by Boehringer Ingelheim, with the support of global and local patient organisations to help share patients’ unique stories. Annelise Rønnow, President of the Federation of European Scleroderma Associations (FESCA) commented: “People living with systemic sclerosis are not defined by their disease. By sharing the stories of real people, this campaign demands that patients are seen for who they really are. We hope that through greater awareness and education, we can better support those affected by the disease so they can aim to lead happy, fulfilling lives.”

~ ENDS ~

The campaign photographer: Alison Romanczuk

‘The Inside Story’ portrait photographs capture the unique personalities of people living with systemic sclerosis (scleroderma). Photographer and sarcoma survivor Alison Romanczuk explains how she approached the project: “There is always more beneath the surface, and I want to invite people to see beyond physical appearances. While identity and body image are important themes to my work, ultimately I'm deeply curious and want to bring personalities and stories to life through the lens.” Alison added, “I hope that these new photographs raise awareness about the disease by showing the true colours of these bright and inspirational individuals.”

Intended audiences

This press release is issued from our Corporate Headquarters in Ingelheim, Germany and is intended to provide information about our global business. Please be aware that information relating to the approval status and labels of approved products may vary from country to country, and a country-specific press release on this topic may have been issued in the countries where we do business.

For references and notes to editors, please visit: www.boehringer-ingelheim.com/press-release/ssc-inside-story

For more information, please visit: www.boehringer-ingelheim.com/respiratory/ssc-ild

Further media channels

www.facebook.com/boehringeringelheim

www.twitter.com/Boehringer

Contact information

Boehringer Ingelheim
Corporate Communications
Media + PR
Manuela Kabus
Phone: +49 6132 – 77 96121
Fax: +49 6132 – 77 6601
Email: press@boehringer-ingelheim.com

Om Business Wire

Business Wire
Business Wire
24 Martin Lane
EC4R 0DR London

+44 20 7626 1982http://www.businesswire.co.uk

Business Wire, a Berkshire Hathaway company, is the global leader in multiplatform press release distribution.

Følg saker fra Business Wire

Registrer deg med din epostadresse under for å få de nyeste sakene fra Business Wire på epost fortløpende. Du kan melde deg av når som helst.

Siste saker fra Business Wire

PacSci EMC Competes on National Stage as NASA iTech Innovation Competition Finalist20.7.2017 21:45Pressemelding

PacSci EMC recently participated as a finalist in NASA’s second iTech Forum, competing to have their innovative idea selected as one of the top 10 in a yearlong initiative to find and foster innovative solutions with the potential to benefit NASA and the nation in the future. This Smart News Release features multimedia. View the full release here: http://www.businesswire.com/news/home/20170720006386/en/ Douglas Terrier, Acting Chief Technologist, NASA presents Peter Current, Steve Nelson, and Bret Omsberg with a certificate recognizing “PacSci EMC as a top 10 finalist of NASA iTech’s Cycle 2 on July 13, 2017.” Photo Credit: NASA The teams competed against entrepreneurs presenting their proposed solutions to tough technology challenges to judges consisting of NASA’s chief technologists, space industry leaders and potential investors. Hosted by the National Institute of Aerosp

Insulet to Assume Distribution and Commercial Support for Its Omnipod® System in Europe20.7.2017 20:01Pressemelding

Insulet Corporation (NASDAQ: PODD) (Insulet or the Company), the leader in tubeless insulin pump technology with its Omnipod® Insulin Management System (Omnipod System), today announced plans to assume, on July 1, 2018, the distribution, sales, marketing, training and support activities of Insulet’s Omnipod System across Europe following the expiration of the Company’s global distribution agreement with Ypsomed AG (Ypsomed) on June 30, 2018. This Smart News Release features multimedia. View the full release here: http://www.businesswire.com/news/home/20170720006257/en/ Insulet develops, manufactures and distributes the Omnipod System, the market-leading tubeless insulin management system, currently used by over 110,000 people living with diabetes worldwide. Since 2010, the Company has had an exclusive contract with Ypsomed to distribute Insulet’s Omnipod System across Europe

Natalia Vodianova Joins PicsArt as Head of Aspiration20.7.2017 13:00Pressemelding

PicsArt, the leading image editing app and creative social network, today announced the appointment of Natalia Vodianova, the supermodel and philanthropist, as Head of Aspiration. In this new role, Natalia will inspire and suggest opportunities to drive positive change through creativity. She has also joined the company’s advisory board. This Smart News Release features multimedia. View the full release here: http://www.businesswire.com/news/home/20170720005372/en/ Natalia Vodianova, the supermodel and philanthropist, joins PicsArt as Head of Aspiration. (Photo: Business Wire) “We are thrilled to welcome a talent and role model like Natalia into our family,” said PicsArt CEO Hovhannes Avoyan. “Natalia has been deeply involved in bringing creative inspiration to the world through fashion and social commitment. She’ll help connect the fashion world and the

Pacific Drilling Announces Early Consent Deadline Results20.7.2017 13:00Pressemelding

Pacific Drilling V Limited (the “Issuer”), a wholly owned subsidiary of Pacific Drilling S.A. (NYSE: PACD) (together with its subsidiaries, the “Company”) announced today the results, as of 5:00 p.m. Eastern Daylight Time on July 19 (the “Early Consent Deadline”) of its previously announced private consent solicitation in respect of its 7.25% Senior Secured Notes due December 1, 2017 (the “Notes”) pursuant to which the Issuer is soliciting the consent of the holders of Notes to an extension of the maturity date of the Notes to June 1, 2018 in order to give the Company more time to negotiate a refinancing transaction or undertake a holistic restructuring with all of its creditors (the “Solicitation”). At the Early Consent Deadline, the Issuer has received consents of holders of the Notes comprising less than 66 2/3% of the aggregate principal amount of the Notes (disregarding Notes held by the

CloudHealth Technologies Expands Business in Europe20.7.2017 13:00Pressemelding

CloudHealth Technologies, the leader in cloud service management, today announced that it is expanding its customer base, partner list and business operations in the European region. Helping to fuel the expansion is $46 million in Series D funding, which the company secured in June. The funding round will help CloudHealth Technologies scale international operations and double the size of its global workforce. This Smart News Release features multimedia. View the full release here: http://www.businesswire.com/news/home/20170720005189/en/ CloudHealth Technologies Expands Business in Europe (Photo: Business Wire) Cloud adoption in EMEA is growing steadily, with the market projected to reach €44.8 billion by the year 2020, according to Market Research & Statistics1. As enterprises turn to the cloud to build apps and manage operations, they improve

I vårt presserom finner du alle våre siste saker, kontaktpersoner, bilder, dokumenter og annen relevant informasjon om oss.

Besøk vårt presserom